Premature Infant / Preemie Parent Resources

PREEMIE PARENTING RESOURCES

About.com http://babyparenting.miningco.com/msubpreem.htm provided by miningco offers links for parenting special need kids.

American Association of Premature Infants (AAPI) / Support Central http://www.aapi-online.org/support.htm offers support for support group leaders.

Baby Pages Webring http://www.geocities.com/Heartland/8639/ offers a way to find other parents online (not necessarily preemie parents).

Child Advocacy and Medical Links https://members.tripod.com/~Lisa_M_K/lisapages/children.html by Lisa K.

Cochrane Neonatal Collaborative Review Group http://silk.nih.gov/SILK/COCHRANE/Cochrane.htm includes articles on current preemie infant treatment issues.

Dealing With Statistics https://members.tripod.com/Greg_Hall_MSSW/ashley/stats.htm a segment of journeyoasis.com which helps clarify how to handle the statistics and articles a preemie parent or thier loved ones will encounter.

Dog Play http://www.dog-play.com/therapyl.html#resources is an excellent comprehensive site concerning pet therapy for folks of all ages.

DrKoop.com Medical and Pediatric Encyclopedia http://www.drkoop.com/adam/peds/ offers a wealth of information about symptoms, diseases, tests, drugs, nutrition and other subjects.

Early Edition Newsletter http://home.vicnet.net.au/~earlyed/welcome.htm provided by Preemie-L listserv group.

Emory Pediatrics Developmental Resources http://www.emory.edu/PEDS/NEONATOLOGY/DCP/ offers an excellent selection of resources related to medical complications, possible developmental problems, and developmental milestones for preemies.

Familyeducation.com http://www.familyeducation.com/article/0,1120,2-4350,00.html offers non-technical educational offers, downloads, quizzes, and polls for parents.

Health on the Net Foundation http://www.hon.ch/home.html is based in Switzerland and offers a variety of FAQ links, distribution links, & library links.

Helping Our Preemies Excel (HOPE) site http://www.hopecatalog.com/index.html offers a variety resources for preemie parents.

Hydrocephalus Email Support Group http://www.geocities.com/HotSprings/Villa/2020/ how to subscribe to a email list which has been most helpful to us.

Kangaroo Care http://www.geocities.com/Heartland/Village/6554/index.html helps bond your child to you.

Neonatal Diseases and Abnormalities http://www.mic.ki.se/Diseases/c16.html offers HUNDREDS of links to an EXTENSIVE list of diseases and abnormalities.

Main Street Moms http://www.mainstreetmom.com/ offers support for stay at home moms. However, moms and dads that are at home part time can also benefit.

Make A Child Smile http://www.makeachildsmile.org/ allows you to send cards or gifts to sick children who currently wish to recieve cards / gifts.

National Father's Network http://www.fathersnetwork.org includes articles by dads about the loss of dreams.

National Parent Network on Disabilities' http://www.npnd.org/ mission of the National Parent Network on Disabilities (NPND) is to provide a presence and a national voice for ALL families of children, youth and adults with disabilities.

Newborns with Disabilities http://www.kidsource.com/kidsource/content4/estate.dis.all.3.html covers legal and financial planning aspects of having a special needs child who needs to qualify for income based assistance programs.

NICU WEB http://neonatal.peds.washington.edu/ offers one of the most thorough sites we have found related to premature infants.

Parentingweb.com http://www.parentingweb.com/lounge/ff_prem.htm offers a number of parenting resources. This link lands you on finger feeding a preemie, but just delete everything beyond www.parentingweb.com to bookmark the main page...

Parent's Place http://www.parentsplace.com/ is a more chatty location to meet other parents and learn about parenting.

Pediatric Points of Interest http://www.med.jhu.edu/peds/neonatology/poi2.html by John Hopkins University provides an EXTENSIVE list of pediatric resources.

Preemie-L Email support group http://home.vicnet.net.au/~garyh/preemie.htm provides email discussion group for parents of premature infants as well as excellent personal support such as member pictures and birthday links to help one to come to know more of the members. However, experts on the list are not required to identify themselves, so you will need to determine which are parents and which are experts.

Preemie.org support group http://www.preemies.org/ was established to help parents of premature infants find other parents having experienced the NICU using various Internet resources. You'll find many caring parents and make lasting relationships by searching through the pages here and the various links provided.

PreemieParents.com http://www.preemieparents.com an excellent site about parenting a preemie.

Premature baby internet resources http://www.comeunity.com/premature/preemiepgs.html an excellent collection of links which can be helpful to preemie parents or their loved ones.

Premature Infants - What to Expect http://cas.bellarmine.edu/verstsem/Premies.htm this is a class site that gives a good overview of what to expect as a preemie parent.

Resources for Parents of Preemies http://members.aol.com/MarAim/preemie.htm by Mary Searcy includes information about medical conditions, complications and treatments.

Shadow Buddies http://www.shadowbuddies.com/page1.html offers a means by which kids can network with children having similar health conditions as themselves.

Sleep Disrupted? Check out UCLA's sleep pages http://bisleep.medsch.ucla.edu/.which offers resources and information related to sleep.

Stress Management http://www.unl.edu/stress/mgmt/ by Dr. Wesley Sime, give a variety of information about stress and how to control it.

Stress Out Bob http://stress.jrn.columbia.edu/site/tensionbreakers/bobindex.html offers insight into stress and how it changes our lives. This specific link lands you on a cute animated Bob.

Support for Unique Families http://www.comeunity.com/ offers support and links for parents of special needs and adopted children.

The Physical and Developmental Environment of the High-Risk Infant http://hsc.usf.edu/~tsinger/ presented by the University of South Florida.

The Preemie Place http://www.thepreemieplace.org a comprehesive collection of resources such as books, articles, links about preemies.

These links are provided as resources for your information, but should not replace medical advice or consultation. Links are left visible so you may more easily print or forward the page if you desire, but please give credit where due.

home page http://www.journeyoasis.com