the cystic hygroma discussion group

Re 15 weeks and counting

From: gmaloney@home.com
Date: 27 Jul 2000
Time: 19:06:36
Remote Name: 24.226.0.227

Comments

Hi:

I am a mother of a 15month old girl, Jane. She was born with a huge(grapefruit size) cystic hygroma on the right side of her neck Her particular problem was that it was not only on the neck, but way deep inside. She was in surgery for 8 hours, the cysts were surrounding her jugular vein as well as lots of other stuff. But her breathing was never an issue and she has grown normally and progressed normally otherwise. It has been tough, but she is a great kid......I wish you luck. I'd love to help more, if you have any questions, please e-mail. Bye Tina