From: luxrycoach@aol.com
Date: 22 Dec 2000
Time: 14:21:44
Remote Name: 63.239.114.14
My granddaughter was diagnosed with a cystic hygroma when her mom was just 10weeks pregnant. By the 8th month of the pregnancy the tumor was gone and the results of amnio all showed normal. We Praise God for this. My question now is although she has only a small roll of skin on the back of her neck, we wonder if anyone else has experienced this. We want to know what to watch for in the future. She is developmentality slow to crawl and situp. She is 10 months old now and been very healthly till this week when hospitalized with RSV virus. Doctors seemed concerned due to her weakened muscles in upper body. Our frustration is the lack of knowledge by most doctors about cystic hygromas and especially with cases like my granddaughter's whose tumor resolved itself in the womb. Also, I am looking for information on the Noona's syndrone. Can someone please forward any information on this and "Robert's Syndrone"???
Thank you from a very grateful grandmother. God bless all of you who are experiencing much worse problems than we are. We are praying for you. Don't give up, God is still in the healing business!