the cystic hygroma discussion group

OK 432 Treatment

From: mickc@austarnet.com.au
Date: 13 Aug 2001
Time: 21:06:15
Remote Name: 203.41.141.253

Comments

My 3 year old daughter has a Lymphatic malformation on her left cheek. She has been for OK 432 treatment 4 times and the Swelling is now about 75% of what it was though not as noticble now as when she was born.

After each injection the Swelling just about doubled, she was sore and very red and bruised in the general area and suffered from high fevers (highest temp we recorded was 42C) for a week and no appetitie for about 2 weeks. Panadol helps a lot.

The Doctor suggested continuing on the injections up to a maximum of 8 as was suggested by a surgeon from Sweden as the maximum but we have opted for surgery as a better solution.

If anyone takes the OK 432 option be prepared for spending a lot of time comforting the child.