Caregiving
A place where caregivers can schedule regular chat sessions or ask someone
else to meet and chat on line.
Article describing typical caregiver role as anyone who provides any type of physical
and/or emotional care for an ill or disabled loved one at home.
Article discussing the 15 to 25 years of caregiving for a loved one
with HD.
The Caregiver's Bill of Rights may help remind you of some things
you may have forgotten to do for yourself
When one partner in a marriage becomes ill, the relationship between the
couple changes. Knowing what to expect can help ease that change and make it less traumatic.
Information addressing caregiver issues and resources will be
linked here in the near future.
A section where you can post information about things you've learned
to help other caregivers.
Articles to help your loved one and you understand what they are going through.
Forms you can download or print out on HD Awareness, At Home Help, Assessments
of Daily Living, Appointments, Medical, Medications, Assisted Living, Nursing Homes, Social Security, Estate Planning and
End of Life issues.
Brief article explaining how everything you read about HD should not be
applied to the person you are caring for.
HD
In depth article about the disease written the National Institute of Health.
Several articles on HD of interest to caregivers.
Links to information on HD from HDAC and other sources. Other FAQS
sheets on HD will be added here later.
Direct link to every known available handbook or guidebook written for families
living with Huntington's Disease on the internet.
An autoresponder Question form to submit any question you have about caring for someone with
HD.
Information you should be prepared for in case a trip to the Emergency Room is required.
Includes links to all Patient Bills of Rights.
Information addressing personality issues and changes in HD will be linked
here in the near future.
Information addressing the various symptoms of HD will be linked here
in the near future.
Stages of HD
Compilation of all known information in on this category in the
"stages" of HD.
Compilation of all known information in on this category in the
"stages" of HD.
Compilation of all known information in on this category in the
"stages" of HD.
Compilation of all known information in on this category in the "stages" of HD.
