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This, in conjunction with Dr. Paulsen's article on
Understanding Behavior Changes in Huntington's Disease, should be the two principal documents for every family of a loved
one with HD. Both documents explain, from different perspectives, what is happening to a person with HD during
the course of the illness. Both of these documents provide better insight into the personality changes perceived
or real. |
Dr. Paulsen's handbook converted to a Word document therefore
it has 46 pages vs the PDF document which has 71 pages. This means that the refernce to other pages in this book will not
be the same. You can still read this book online (See HD Guidebooks), download the PDF document, or order it from the HDSA. In any case......make
sure it is part of your HD Caregiving triad of material along with Dr. Snowden's and the Physician's Guide To HD! |
still has some good information for all HD families today. Discussess:
Behavioral Problems, Care,
Goalsm, Melborne Care, Scapegoating, Brain Cells
Consequences, Inhibition, Learning andFamily Physicians
You
may also want read Dr. Chiu article discussing quality of life in HD care: "We
put quality of life as the main criteria for decision making regarding their
lives. What makes for quality of life is worth doing. What detracts from quality of
life in not worth doing." 27-Nov-01 A Dr. Chiu Treasure |
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