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Welcome to Rhonda's World

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Hello my name is Rhonda Jo, and I have Rett syndrome. My world is probably very different from yours, because I cannot talk,or walk. I have no way of communicating,except for eye gazing. If you look deep into my eyes you may catch a little glimpse of Heaven. For I am an angel on loan here on earth. I am 26 years old . My doctors had no diagnosis for me until a few years ago. I live at home with my mom and stepdad,and spend a lot of my weekends with my dad and my future stepmom. She wrote a peom for me I would like to share with you.below.


A POEM FOR RHONDA

I SIT BESIDE YOU AS YOU LOOK UP AT ME,
AND I WONDER HOW HARD IT TRULY MUST BE.

TO BE LOCKED INSIDE A WORLD OF YOUR OWN,
HAVING YOUR THOUGHTS AND EMOTIONS NEVER KNOWN.

I CAN SEE YOU TRYING SO HARD JUST TO SAY ONE WORD,
BUT THAT BEAUTIFUL SWEET VOICE WILL NEVER BE HEARD.

I TRY TO IMAGINE WHAT AND HOW YOU MUST REALLY FEEL,
TO BE SO TRAPPED - TO BE SO STILL.

TO WATCH THE WORLD AS IT JUST PASSES YOU BY,
NOT BEING ABLE TO CATCH IT NO MATTER HOW HARD YOU TRY.

SO I ASK THE QUESTION "LORD WHY THIS SWEET CHILD?",
I WOULD GLADLY TAKE YOUR PLACE EVEN IF ONLY JUST FOR A LITTLE WHILE.

SO YOU CAN HAVE JUST A LITTLE FUN,
DO THE THINGS YOU HAVE NEVER DONE.

LIKE SINGING ALONG WITH YOUR FAVORITE SONG,
OR DANCING AND PRANCING ALL NIGHT LONG.

TO SMELL THE FLOWERS AND TASTE THE RAIN,
TO SEE THE CLOUDS ROLLING BY LIKE IN A MOVIE FRAME.

TO LAUGH AT ALL OF YOUR DADDY'S SILLY JOKES,
TO HOLD SOMETHING AS SIMPLE AS A CAN OF COKE.

TO DRIVE A CAR - TO MARRY A BOY,
TO TELL YOUR CHILDREN A BED TIME STORY.

I WOULD GIVE ANYTHING FOR YOU TO BE ABLE TO SAY "DADDY I LOVE YOU TOO"
OH RHONDA, EVEN IF ONLY FOR JUST A LITTLE WHILE I WOULD GLADLY TRADE PLACES WITH YOU.

I LOVE YOU RHONDA!!

MARY ANN



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