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An Ode to a Butterfly Girl
Dedicated to Erum Khan.
By Jessica Dimas

Laying in my bed, can't see, can't talk,
unhappy, miserable and not able to walk.
I'm sorry to say, that I'm going away.
So he comes and he says, you did it, you finished, your done.
and he takes me and says,
say good-bye to the earth down below.
my Angel says it's time for my crown, my wings
and my very graceful bow.
Most of all the pain is gone now.

I'm happy, not sad, not mad, but so glad.
I'm a glorious Angel who lives up in Heaven.
I see my mom and my dad and brothers.
I watch over them this way.
I laugh and have fun with no bandages all day!
I do all the things here that I couldn't do there.

So farewell ... with butterfly kisses way up in the air!

Epidermolysis Bullosa was finally on Oprah! Thank You Andrea and Racheal!

October 10, 2007 EB Symposium

Above pictured,(left) Adrianna Garcia,(middle) Dina Schnable,(right) Viktoria Kontos. Lower left Maria-Eleni Dimas and Jessica Dimas. Above pictured right Dr. Donaldson who is a Radiologist at CMH who has done numberous dilitations for Jessica, and attended the EB symposium.

A Profile of a Butterfly Child (RDEB) This page is about Jessica Dimas (my daughter) who suffers from Recessive Dystrophic Epidermolysis Bullosa, here we talk about her from A to Z.

~Thanks to all who keep praying for Jessica.~

Jessica's Old Wish Page

*Organizations Supporting EB Awareness*
DebRA of America
EBMRF
EB Info World
EBAN
Other stories of Epidermolysis Bullosa...

Vincenza's Story (RDEB H-S) ~by Giorgia Pilla~
In this story you will read about a young lady named Enza who also had -Recessive Dystrophic Epidermolysis Bullosa, and died from complications of EB.

Dan Burger's Story (RDEB H-S) ~By Karen Burger~
Written by his mother. This is a dedication page to Dan Burger's life.

Cristina Talks (RDEB H-S) about esophageal problems related to Eb ~by Cristina Perez~
A wonderful sweet 16 year old who has (BUT NOW IS 21 YEARS OLD) Recessive Dystrophic Epidermolysis Bullosa, writes about coping with esophageal strictures and blisters

FundRaiser for EB in Illinois In Bartlett Park, July 21, 2001

Coleby Brystal Myers (JEB-H) with Polyoric Atresia ~Written by Jayme Myers~ This page is about precious angel Coleby Myers, born to Traci and Jayme Myers. Just 10 days old, tiny Coleby lost her life to (junctional_herlitz) EB.

Baby Logan (JEB-Herlitz) gives Brauns new meaning to Life ~by Carol Moorman~
This is a tribute to a baby-boy who lost his life to Junctional Epidermolysis Bullosa- Letails

An article about Dr. Eisenburg and the Ortec Skin he discovered

An Article about a rare skin disease called Epidermolysis Bullosa in "The Daily Herald"
(This article is about Jessica Dimas' 4th dialation)