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"Princess Emily's Wish"

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Every fairy tale has a beautiful princess. In my story the little princess is named Emily. She arrived in this world on June 27th 1993. Anticipating her arrival was her mother Michelle, father Joe and big sisters Katie and Lauren. Although not the best sleeper, Emily was always a good baby. She enjoyed a normal and healthy life as a baby and toddler. Emily is the only blue eyed child in the family. This is very special to Emily's mom as she and Dad (Joe) and Lauren have brown eyes and Katie has hazel. The only other blue eyes belonged to Michelle's dad (Papa) who passed away August 14th,1997.

Emily and mommy Michelle
Emily and daddy Joe

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Emily is a loveable 5- year -old with many joys in life. Her favorite movie is "Grease" and the TV show "Rugrats". Her special colour is purple and she loves Barney the purple dinosaur. She'll gladly pose for you and enjoys playing dress-up. Emily likes to swim or play in the park. She always has fun playing with big sister, Katie and Lauren. Her collection of "Beanie Babies" is any little girls dream.

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Emily posing in her "Bikini attire" :)
Emily with sisters, Lauren and Katie
"Our Little Princess Emily"

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In January 1998 it began with a fall down the stairs at home. Emily complained that her legs hurt. A visit to the doctor checked out ok, but she couldn't walk. She had a serious limp and spent a few days on the couch. She had a slight fever, but was thought to be contributed from Emily's fall. This continued off and on for weeks. She'd seem to be better, but then started to complain of joint pain again. An orthopedic specialist thought it might be Juvenile Rheumatoid Arthritis. He ordered a blood work up which showed and elvated sed rate. This showed Emily was anemic; but didn't explain the joint pain. An x-ray showed nothing out of the ordinary. She was given anti inflamatories to try for a couple of weeks but this did nothing. Emily was still feeling yucky with a slight fever off and on. One morning she woke up in serious pain. Michelle and Joe decided that was it! They wanted answers. Their pediatrician of 11 years had just retired so they had to start from the beginning with a new doctor. Michelle calls her an angel. She pourd over Emily's records with her parents for an hour and a half. She sent the family to Stanford Children's Medical Center.

Emily playing on jungle gym at the park
Looks like the teddy's are having fun too :)

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The next morning Emily was in to see the Reumatoid specialist. After an examination, lots of questions and more examination she told Michelle and Joe that she believed Emily had Leukemia. Michelle and Joe were stunned. They were immediatley sent to the oncology unit. Emily underwent a series of lab work and a bone marrow aspiration :o( . The results would take an hour; but it felt like an eternity. March 27th, 1998 Emily was diagnosed with Acute Lymphoblastic Leukemia (ALL). From that moment on their lives changed forever.

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From the moment of diagnosis Emily has been such a trooper. Her joint pain was so sever, that anything done to her medically was a relief. Emily's first dose of chemotherapy was given while doctors were doing the first spinal tap also known as a lumbar puncture. The chemo drug was administered into her spine, it then would travel to her brain to kill off any cancer cells hiding there. She was asleep for this procedure. Michelle and Joe were told that Emily would need to be in hospital for 30 days for what was called the "Induction phase" of her treatment. But "our little princess" proved them wrong....she was out in 8 days because everything was going so well. While being on this phase Emily was on several types of drugs. A few of them are: Vincristine and L'Asparaginase (chemo drugs) fetinyl (pain med)septra (an antibiotic) zofran (anti-nausea) and the dreaded Prednisone. One of the affects of Prednisone is it makes you eat and eat and eat! Emily would wake up in the middle of the night starving! She would ask for things like, hotdogs, meatballs,ham, turkey, string cheese...the list goes on! Michelle says it was amazing! Another side affect of the "dreaded prednisone" is you get a "puffy face" Emily's looked like that of a chipmunk. Through out this whole ordeal she only had 1 complaint, the prednisone tasted "YUCKY!" This is where the families imagination came in. Chasing it with a teaspoon of peanut butter wasn't so bad. But the story I liked the best is this one. Nana also helped Emily take her prednisone, between the 2 of them they had a deal. Each time she would take her prednisone Nana would give her 50 cents, so began Emily's money jar. This jar was filled rapidly; think about it..prednisone 3 times a day and visitors also contributing to the "money jar", way to go Nana. And most important way to go "Little Princess."

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Emily on Prednisone.
I think she's got the cutest chipmunk cheeks ever :)

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With all the chemo treatments Emily was on, her long blonde hair started to fall out. Everytime it was brushed, more would fall out. It was decided to cut her hair into a "bob cut." And later as it was still falling out, Emily's hair was again cut into a "pixie cut" Michelle said it looks darling on her.
At the end of April Emily was declared in remission! What a relief. Iduction phase of treatment was over making way for the consolidation phase. This phase means besides going in for weekly visits, every 3rd week Emily would have to be admitted into hospital for a 3 - 4 day stay. The reason for this is she would be administered a strong chemo drug by the name of Methotrexate :( The Methotrexate made Emily pretty sick and also gave her awful mouth sores. Still being the trooper she is, Emily never complained. Emily's moms words quote: "She was always so strong and brave! We are so very proud of her."

Emily in hospital :(

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Update: Emily has just finished her consolidation phase of treatment on August 20,/98. Way to go Emily!!!!!!She has a bone marrow aspiration set up for Sept. 9,/98. With this , it will tell if Emily is still in remission. If so; then she will start the final phase of treatment...maintenance.
On August 24th, Emily had quite a bit of excitement. Two "Make A Wish" representatives came over to her house to vist. With them they brought balloons and gifts just for Emily. They asked a very important question for her to answer. What was Emily's "bestes" wish ever? She was so thrilled! Emily decided her wish would be to go to Florida, and meet "that big purple dinosaur, Barney" and go to Nickelodeon Sudio's and Disneyworld. Emily's two big sisters Katie and Lauren couldn't be happier :o) The whole family will be driven to the airport in a Limo, and another one will be waiting to pick them up when they get to Orlando. The trip will be taken early November and last 1 whole week....a week of dreams for a very beautiful princess. May you have a wonderful time. Many hugs go your way "Little Emily" you are truley another one of my hero's. {{{{{{{{{{Emily}}}}}}}}}}}} Love from Jackie

Bone Marrow Aspiration Update: YEAHHHHHHHHHHHH Emily's bone marrow is clearrrrrrr!!!!!!!

Emily's Beanie Babies Collection
Her favorite is Bessie the Cow born same day as her

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My personal reasons for doing "Princess Emily's Homepage:

Although I have never met Emily, this little princess is very close to my heart. The main reason I took on this page , is because of my own experience. I'am a mom of 4 children, my oldest son Tyler was diagnosed with ALL and AML in August /94 at the age of 13 1/2. After four very long months, 1 month after his 14th birthday, Tyler passed away. My goal is; to help other parents going through what I have. The devistation of having your child so ill or losing them is uncomprehendable. No parent or child should have to go through it. And for the ones who do...may they never be alone. Doing webpages for others helps me, as much as it helps them. I have done many pages and helped others do their own. What great satisfaction it has become. The webpages for the children are what keep me going. A child's smile can light up a room and make an old heart sing. They are truely our little angels on earth.

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If you'd like to send something special to Emily her P.O. Box is:
PO Box 1247
Capitola, Ca. 95010

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Emily's Award of Honour ,please take this award as our gift to you. Place it on your webpage so all know how very special our children are. Don't forget to link it back to Emily's page please.

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LET ME KNOW HOW YOU LIKED EMILY'S PAGE

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PLEASE GO TO EMILY'S GRATITUDE PAGE
A HEARTFELT THANK YOU BY MICHELLE, EMILY'S MOM

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NEED INFO ON EMILY'S TYPE OF LEUKEMIA
GO TO HER LINKS & WEBRINGS PAGE

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Well Emily you did it sweetheart! You won the webpage of the year! You should be so very proud. I couldn't think of a more beautiful princess to win. Way to go sweetie, Love you bunches Jackie

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http://moonlight-designs/backgrounds.html

You Are Princess Emily's# To Visit Since August 29, 1998

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