Just to set the scene, I
was a carpenter and have been for around 18
years, well 10 working in the trade. On 29/8/90
I had an accident that was to drastically change
my life for the worst. Whilst installing a 52kg
tool cupboard to a wall, it slipped on the bottom
bracket and fell down and go boom. The problem
is it went BOOM on my left knee, "damn" I said
(well you guys can use your imagination there).
Yep it hurt, but not enough for me to stop
working, silly me just kept on doin' my job for
the rest of the day and half of the next day too.
That's when my world shit itself! Lunch time
that day my knee locked up, so I stopped working
went to the doc, had all the tests and nothing
much showed up, so off to physio I go. Well that
did JACK SHIT! I remember when the ice was put
on my swollen knee, it hurt, but hurt like
nothing that I had ever felt before, the ice made
it burn, but still nothing much out of the
ordinary, I just thought the ice wasn't wrapped
in enough towels. Well the knee kept on
deteriorating at a rapid rate, so I was refered
to an Orthopod doc. He did an arthroscopy and
lateral release and found the entire
retro-patella was bruised and a grade 2 tear or
somethin' or other.
Again off to
pyhsio, but this time the ice REALLY hurt, like
nothing I had ever experienced before. It was
like my leg was thrust into a blast furnace with
10,000 volt current being sent throught it as
well. I can honestly say that's the first time
as a bloke I cried and writhed in pain. This
torture went on for awhile, before I said "ENOUGH
IS ENOUGH!!!!!!!!" and got a second opinion.
This doc told me that I had Reflex Sympathetic
Dystrophy, I said "What the fuck is that?" He
sort of explained it and said it will go away
soon, that was 8 years ago. I have been through
all the treatments in 8 years, told it was in my
head, the colour changes that were happening in
my affected limb were psychological and I should
be better. Well guys guess what? I AINT
BETTER!!!!! 8 years from the original injury
this curse (now called Complex Regional Pain
Syndrome or CRAPS for short) has become "GLOBAL"
which pure and simply means it's in every part of
my body nearly. I guess here in Australia where
this disease isn't well known, I'm an "In Theory"
case. OK just a little about this disease so you
maybe able to better understand where I'm commin'
from.
As the name Reflex Sympathetic
Dystrophy implies it involves the body's
"Sympathetic" nervous system. At the time of my
accident I sustained a heavy blow to the top of
the patella, which set into motion a chain of
events that led to RSD. Rest & ice just added to
it. RSD is thought to be a "short circuit" of
the sympathetic nerves, that produces, pain, pain
and more pain. There are some real kewl colour
changes of the affected limbs that go with the
curse, red to white to blue. Some of the other
symptoms are, extreme sensitivity to touch even a
slight breeze or the touch of bed sheets cause
extreme pain. Swelling, yeah that's there, also
burning no make that SUPER NOVA type burning that
goes on 24/7. Insomnia, dry cracked skin,
brittle nails, movement disorder, dystrophy,
increased/decreased hair growth, osteoperosis and
osteoarthritis. Vasoconstriction, that's where
all the blood vessels in ya body decide to
squeeze shut just a bit, reducing blood flow
around the body. This also causes heaps of other
problems, vision problems, short term memory
loss, dental decay & kidney problems just to name
a few.
Today as I'm typing this (18/3/98) I have just
seen my pain doc and got more bad news, I asked
for an honest prognosis (pretty fucking stupid
huh?) and he gave me one. Seems that the curse
wants my arms now and it's makin' plans for it's
invasion, fuelled on by an abbcess in one of my
teeth, the one that the insurers (one dickwad of
a clerk named John Burn. "Hey Burns get ya head
outta' your ass and read those doctors reports,
ya wanker!") can't link to the RSD, even though
they have 8 reports from different docs STATING
that this is a direct result of the RSD and it's
decreased blood flow aroung the body, the dry
mouth from the meds and the decalcification
caused by the RSD. My pain doc wants to put a
Spinal Cord Stimulator in, which will help the
legs but is a risk with any kind of infection
present. He will do the opperation but will give
heaps of antibiotics, before, during and after
the opp. I will also be required to stay in
hospital twice as long as is usually required and
if the doctor notices any redness around the
incision sites (2-3 of them) he will knock me out
and remove the SCS. Now if this sounds like
scarey shit to you guys imagine what it is like
being this little black duck! I'm shitting
bricks! Man when they mess with the insides of
your spine you have just got to be so sure that
nothing is gonna go wrong! I guess a "Golden
Staph" infection is something that I haven't had
yet, so I may as well try it.
Now as
to the effects on everyday life, well as you
could imagine everything is stuffed, from family
life, to social life to everyday life. Before my
accident I was a physical worker, played sport
(tennis, squash, sprearfishing, karate etc etc)
and had a pretty keeeeeewl social life. Now I
don't work, don't play sport and have no social
life. I have 2 children, both boys (Zachary 4,
Timothy 2) who will never know what it is like to
kick a ball around with their dad. Playing
cricket with them is a pretty dull event, they
hit the ball, 5 minutes later dad gets it and is
just about ready to bowl it back to them. I feel
for them, I guess because they don't know any
different yet, but in time will realise as they
get older that I am not normal and can't do
normal father son things with them. When they go
to school and a friend asks "What does your dad
do for a job," they will have to answer "He is a
vegetable and on Workers Compensation." I'm
sorry I don't find the example that I'm setting
for them is a good enough. Maybe one day I will
be able to return to work, I have done it before.
I retrained myself as a driving instructor and
worked in that occupation for approx 16 months
till the RSD went ballistic on my ass. To date
the RSD IS in my legs & hips, arms, right kidney,
jaw, spine. It is affecting my vision, hearing
(tinitus & can't hear as good as I used to),
memory short and long term, the shakes are a good
one too, just love 'em!
20/5/1998 Saw my
doctor today, more bad news!!! Due to the
worsening of some of my symptoms and several
other factors, my doctor and the visiting
Professor have concluded that the RSD has crossed
into the "Autonomic Nervous System" and to soon
expect coronary problems. Palpitations started
around 2 months ago, never did I think it was the
RSD, UNTIL NOW! I hadn't told the doc this until
he mentioned coronary problems too me. He said
it's either the RSD or a brain tumour, the latter
he's nearly 100% sure it isn't. So when you add
up all the information, it boils down to being
"Terminal". How long? no one can say. To
explain what this will do when it reaches the
pump, imagine your computer is being sent bad
files and your computer doesn't know what to do.
What does it do? It crashes!!!!! I'll keep
posting every so often so you guys can know when
it happens, sort of like the "Death Clock" that
is at another site on the web. TICK, TOCK, TICK,
TOCK, TICK, TOCK, TICK, TOCK.
9/6/1998
Status Report: STILL SUCKIN' AIR!!! All systems
are go! So far so good (except if you were my
insurance company LOL)!
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