Our child remains very small for her size. However, all women in the family on the father's side are small. We have been unable to find growth charts which take family member size into account. She enjoys eating table food - preferring to feed herself - but at nearly 4 years, she remains on Pediasure to maintain a high calorie intake. You may also wish to check out our g-tube / feeding issues page at http://members.

Celiac Disease, Gluten & Cereal Grain Allergies http://www.alphanutrition.com/celiac/index.htm by Alpha Nutrition.

Food Allergy Network http://www.foodallergy.org/ offers a newsletter and quite a bit of food allergy information.

Food Allergy Questions & Answers http://www.foodallergy.org:80/questions.html helps clarify the difference between food allergy and food intolerance.

Wheat / Gluten free diet info http://www.wwwebguides.com/nutrition/diets/glutenfree/food.html provided by Webguide.

(We checked allergy topics when she started falling further below the growth curve in spite of eating on a regular basis.)

Conor's Story http://members.aol.com/lmwill262/page/index8.html covers one mom's story about feeding issues and includes links to other feeding issue sites.

Kennedy Krieger Institute http://www.kennedykrieger.org/ offers a variety of subjects, some having links to CP info, feeding issues, and prevasive developmental disorder (look under diagnosis). Don't miss the small webring link to find additional research sites.

A g-tube was recommended by one doctor, then not recommended by the second opinion doctor since she does not have trouble swallowing. A g-tube does not neccesarily address a malabsorption problem.

Growth Chart http://babyparenting.miningco.com/library/weekly/aa072597.htm by About.com.

Growth Hormone Deficiency Home Page http://www.mhamer.freeserve.co.uk/ This site has been developed as a source of information and support for growth hormone deficient (GHD) and short stature kids and their parents.

Growth Percentile Calculator http://www.babycenter.com/growthchart/ by Similac Baby Formula.

Growth Standards can result in Faulty Decisions http://www.news.cornell.edu/science/July97/growth.standards.ssl.html Cornell University nutritionists note that "millions of healthy infants may be assessed as growing too slowly beacause of inadequate international child growth standards."

Does small size increase risk? Not necessarily - a smaller percentage are found to be at risk in new study at Southwestern http://irweb.swmed.edu/newspub/newsdetl.asp?story_id=125 .

Lab Values in Nutritional Assessment http://w3.uokhsc.edu/mguild/CN2Case/sld001.htm cautions about how many samples were taken over time, who drew the lab, who performed the tests on the sample, was sample contaminated during transportation, etc. An excellent sire if you are looking for items which can distort tests related to growth and nutrition.

Pyloric Stenosis http://www.healthanswers.com definiton, causes, prevention, and symptoms by Healthanswers.com.

Pyloric Stenosis http://www.emedicine.com/EMERG/topic397.htm also known as Infantile Hypertrophic Pyloric Stenosis.

BioMedNet.com http://www.biomednet.com offers access to journal articles for around $250, but you can look at the abstract for free. This abstract notes that Mitochondrial fatty acid -oxidation is a major source for energy production, particularly at times of stress or fasting. Inborn errors of fatty acid oxidation have emerged during the past decade as important inherited causes of severe metabolic disturbances in infants.

Fatty Oxidation Disorders http://laran.waisman.wisc.edu/fv/www/lib_mcad.htm contains links and info about fatty acid oxidation issues.

The Mitochondrial and Metabolic Disease Center http://biochemgen.ucsd.edu/MMDC/links.htm offers a variety of links and info on metabolic disorders which can result in small size. University of California San Diego

Long-chain 3-hydroxyacyl coenzyme A dehydrogenase deficiency (LCHAD) is a recessively inherited genetic disorder of mitochondrial oxidation of fatty cids which has been associated with moms who had HELLP Syndrome during thier pregnancy. See this site for more information. http://www.ipass.net/~juliemc/lchadtest.html.

Mitochondrial Disease Information http://www.umdf.org/frame/INFO_F.HTM gives more info on mitochondrial issues.

Mitochondrial Disease Overview http://www.umdf.org/pdf/MITOCYTO.PDF by Bruce Cohen MD gives good overview of condition, comes to you in pdf format which requires Acrobat or similiar software (10 pages long).

Neonatal Diseases and Abnormalities http://www.mic.ki.se/Diseases/c16.html offers HUNDREDS of links to an EXTENSIVE list of diseases and abnormalities.

The United Mitochondrial Foundation http://www.umdf.org/ offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Please help us redefine hope for the thousands of children and adults whose lives are compromised or shortened by the effects of mitochondrial disease.

Recent evidence suggests possible linkage between diabetes mellitus and mitochondrial gene mutation see this Medlink article http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=95080495,&form=6&db=m&Dopt=b .

©2004 Greg & Christa Hall

home page http://www.journeyoasis.com

Contact us at greg@journeyoasis.com