Links to the Stories
This is one sufferer's story -- (click on the link above for the full story)
"What lies behind these eyes? Dear Dercum's sufferers, perhaps only you could understand. I have now grown Dercum's tumors on nearly every nerve in my body. I have forgotten how it feels to feel good, after 39 years of Dercum's and 2 years of osteoid osteoma. Only deep faith in the goodness of G-d, Yoga breathing, meditation and prayer, and most of all, the love a affection of my dear husband of 41 years, and my 3 caring children (and the laughter of my grandchildren.) The attached story pretty well outlines my history, 20 years of a quest to find a diagnosis, what worked, what didn't, and where I am now. At this point I am 63 years old, and mostly bedridden. I think death might be a mercy, but, like most sane people, I don't really want to die. I just want this horrible pain to stop. But it never does, not for one second unless I'm unconscious. In the last 125 years since they discovery of Dercum's, no serious research has been done. I pray that this will change. Maybe this Website will be a help in some way. G-d help you and give you the strength to bear, if you have been unfortunately stricken with this mysterious, painful condition. I believe that people with Dercum's go straight to Heaven, because surely we have already suffered Hell. -- Peace & blessings, Sara Mandell"
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