
10-8-52 to 7-14-91
AGE 39
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Charley did not want to die, he fought the disease with every known means. He suffered horribly with AIDS related Non-Hodgkin's Lymphoma. He was a Christian. |

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This is my brother, and his long-time companion, and me having fun--before the deadly virus took over and destroyed their lives. See our smiles? Each of us knew then what the future would bring. Before Charley got "extremely" sick, he began writing about our mother. He thought of it as the beginning for a book he would hopefully have time to write. I feel that publishing here is what he would want me to do. It may be of help to someone in a abusive relationship. |
To be Continued...Dorian

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I have four brothers. Charles has a twin brother Joel. I have a twin brother Ken and we have a brother Peter. I was born a few minutes before Ken. Years passed and mother remarried and my brother Peter was born. The twins Charles and Joel were born when I was 13 years old. Charley was very small and had to spend extra time in the hospital. When he weighed enough to come home, I went with Dad to bring him home. Because he was so little I called him our little "Wrennie-bird." We bonded and became especially close throughout the years. At a very young age my twin bother Ken and I were separated. I did not see him again until I was grown and married. But that is another whole story, for another page sometime in the future. To be Continued...Dorian 07/10/98 In a few days it will be 7 years since by brother died. This morning I received a letter from Sharon a nurse who had trouble accessing this page. I hope I have made the necessary corrections so that no one will find it difficult to navigate. My brother died in a hospital in Austin Texas. He had many doctors some very good and some bad. I realized at the time that none of them really knew what to do for him. The most they could do at the end time was run more tests. Perhaps, that was good for science, but it was not good for him. Who came through for him during his many illnesses were his nurses. They did everything they could to alleviate his pain even confronting his doctors about using Marijuana. They said they were doing all they could. He was never free of terrible pain. During his final hours one nurse, I know risked her career, when she was unable to get a hold of his doctor, by administering more pain killer than was prescribed. God bless that nurse. However there was one nurse, who wanted to "follow the book," and resuscitate him when he began to choke. My brother died of cancer, a little over one year after being diagnosed with having "non-Hodgkin's lymphoma." The old term "lymphosarcoma" was used, also the term "large cell immunoblastic type." From reading my more recent Merck Manual I know that the medical profession knows more about this type of cancer now and uses different terms for it. The doctor's believed his cancer was HIV related. With the discovery of a tumor connected to his intestines, surgery was performed to remove "all of it they could see," then aggressive chemotherapy and radiation followed during the year preceding his death. Just how long had my brother been HIV infected? My guess is that he had been infected for about 10 years. During that time Charles had been in denial of HIV infection. MEMORY 10-30-98 "Midnight, not a sound from the pavement Has the moon lost her memory She is smiling alone In the lamplight The withered leaves collect at my feet And the wind begins to moan" "Memory, all alone in the moonlight I can smile at the old days I was beautiful then I remember the time I knew what happiness was Let the memory live again" "Every streetlamp seems to beat A fatalistic warning Someone mutters and a streetlamp gutters And soon it will be morning" "Daylight, I must wait for the sunrise I must think of a new life And I mustn't give in When the dawn comes tonight will be a memory too And a new day will begin" "Burnt out ends of smoky days The stale cold smell of morning The streetlamp dies, another night is over Another day is dawning" "Touch me, it's so easy to leave me All alone with the memory Of my days in the sun If you touch me you'll understand what happiness is Look, a new day has begun"
07-14-98 The seventh anniversary of Charley's death. I think of him and no longer cry. I remember the crazy good times. |
To be continued...Dorian

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by Charles L. Rubba ***Bitter Sweet Reunion Hospice and my Prozac Experience Pro Medical Marijuana ***Child Abuse, Hemlock Society, Human Rights Etc. My Home Page ©copyright by dorians_chalet 1997,1998,1999---2016 dor_@cox.net __________________________________ |