My name is Sherry and I am 38 years old. I have endometriosis, that is extremly painful. I was first diagnosed with this disease when I was 26 years old (I had been suffering off and on since I was age 11). At that time my dr assured me that if I were to consent to a hysterectomy, I would be cured" and pain free. In other words I could go back to a normal life.

Well they went in and did a partial hyst.

Seven years later I was in pain again and they completed the hyst. Of course by that time I was homeless, jobless and very depressed. I was told I should have no more problems with endo.

Last year was the absolute worst, I have been sick for the last year, have lost my business, and am in more pain now than I ever have been. All thanks to a quack dr, who dosen't know what he's doing. He actually spread the endo around when he operated last year. I even have a copy of the last surgurey report that he says it's too much for him to handle. We live in a small area and no other dr will take me as their patient because they don't want to make this "big fish" dr angry.

I have no insurance anymore, have several drs agreeing with diagnosis of endo but no one seems to be able to help. Was referred to a pain clinic and they said even though I was in agony from the pain they did not want to treat me because the condition could be treated with surgurey and it wasn't their fault if I couldn't find a dr who would do the op. It's a regular catch 22.

I have been in so much pain and become so despondent lately that the only thing that really keeeps me from wanting to kill myself is that I belive it is a mortal sin (dosen't stop me from begging God to let me die though).

I was about 105 ppounds and now hover around 75 or 80, although my tum. is so bloated I look preg. Have diarhea 6 to 12 times a day (with blood) and spasmotic vomiting (have become so dehydrated been rushed to er). It seems when I am in pain now my heart rate increase, as last time I was in er it was 184/min, they kept me a long time that night. Have passed out several time from the sheer intensity of the pain. Keep saying I can't go on like this, yet I keep going on like this.

I don't know how much I would be able to contribute to your list, as sometimes am so sick, can't do anything but sit and cry from the pain.

Would appreciate any ideas you might have. Praying for pain free days.

Sherry aka callycokitten@hotmail.com

FEB 08,2000