I will just give you a little brief on my past. I was born with 3 holes in my heart and NO AV canal (the wall that separates the 4 chambers) So my first surgery was at 10months and it was to repair the AV canal. They put a Dacron patch in the middle of the 4 chambers (kinda like this *l* only with 2 other dots on either side). Drs had said that most normal children (without down syndrome) did not make it. But i did.
I was also born with a malformed leaflet (there 4 of them besides each of the 4 chambers of the hear) They kinda sorta repaired them but i am not sure what they did, (That was also in the first surgery).
My second operation was at 18months. To repair my mitral valve. Because the mitral valve was damaged by a fever. (So now i CAN NOT have any sort of fever. Because it is fatal for me) So they put in an Artificial mitral valve and a pacemaker (i've had several pacemaker changes throughout my life). But the drs were not sure how long it would last. They longest artificial mitral valve lasted 11 yrs. Well, i beat that. I did 17, which i'm proud of. I'm 100% depended on my pacemaker. That thing goes and i only have MINUTE to live. Not even 20 (which is very scary) SO all my life i've HAD to live about 5 minutes away from a hospital. Even my school was RIGHT near a hospital LOL.
My heart problem is called Congenital Septal Defect (it affects the upper Atrium and the lower Ventricle) Now most people have only 1 affected NOT both. So i'm rare.
If i may ask, for prayers. That the valve does nor close to fast. Because i can not have any stress so i may have to drop school which really gets me upset because i've worked very hard in between operations and being dx'ed with FMS and have scoliosis And the operation for that. I just want to complete my last year of High school with out any problems
Thank you
Hugs
Tasha