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I am on the left with my Brother and his girl friend on the right

Denise's Story



Well, my name is Denise.. I am 30, will be 31 on Sept. 30th. I have been married for 4 & half yrs. no kids.... I started getting medical problems when I was about 10yrs. old...at the age of 10, I started having terrible stomaches, they couldn't find anything wrong so they assumed I was faking, then they took out my appendix for no reason... then when I turned 15 they found out I had Irritable bowel syndrome.... Then by the time I was 18 I had to have surgery on my jaw for TMJ, I had 2 surgeries for that....Then about a year later, I was having terrible sweats at night jumpy and my pulse was racing so fast, so went to my doctor and he says oh there is nothing wrong with you, you know you Denise you just have anxiety and sent me home, which I new something else was wrong so went to my Uroligist and took one look at me and said I had hyperthyroid, so I went back to this stuped doctor and found out I had Gravis Disease, so I had to take the Iodine that knocks out your thyroid, and now I am on synthroid to keep it at level..

Okay when I turned about 25 I started getting these terrible headaches and backaches, so bad I was in tears, and of course the doctors never gave me anything stronge enough to help.....They did a MRI and found out I have 2 herniated disks in my back, and they are baffled cause I have never had any trauma to my back..So I suffered for the next couple of yrs. in pain, going to doctor to chiroprator, physical thearopy...Then 2 yrs ago, I had my first urinary track infection, so the doctor gave me anibotics and they didn't work, so he sent me to a uroligist, he wanted to do a cystoscope, little did I know he was going to stretch my bladder, when I woke up I was doubled over in pain and crying and couldn't urinate, you now the only thing they gave me for pain was Extra Strength Tylenol!! I went home, and ended right back in the hospital with a cathider, they were so mean, i wanted to talk to my doctor so I asked the nurse to call him and she just looked at me and no, and I said why and she said do you really want to know, and I said yes, she said he told me to tell you NOT to call him, All I could do is cry!! He said I should have any pain...The diognose was that I have Interstial Cystitis..So I went to another uroligist in Johns Hopkins and he said that when the other Uro went in and saw the reddness and stuff he was seeing the ending of my urinary track infection, and that he probably did some damage! I knew it, I don't fit in the catagory of people who have IC...It is so painful!! then 4 months after that, I found out I had and obstrution in my right kidney and a blockage and stones sitting in my bladder, boy was that painful....I ended up in the er 4 nights in a row before they did any xrays!! and when they did do it, they said we see nothing wrong with your xray, and sent me to my uro. and when he looked at them he said no wonder your in so much pain and then said what I had!! It is scarey to know there are so many dumb doctors out there, it's like we have to know just as much as they do! Well now i am having alot of pain with my back, bladder, my muscles hurt so bad, I can barely get up in the mornings, I can't work..I am seeing a Dr. Gerwin, hes okay, he has me on Oxycotin 10mg. but the side effects are really unbarable, so when I called him to set up app. I told him about the side effects and wanted to see me...when the nurse called to set the app. up I asked her to ask the dr. if he could send me some percoets to last me till i see him, cause the Oxy was not managing my pain and she said she would, I got NOTHING! I can't believe he wouldnt send me anything...He sends my meds through the mail for me....I am not that happy with him, if there is anyone out there who knows of a good doctor in maryland, It would mean alot to me.....I have no life, I don't live, I am just exsting...I feel like I just want to die! I just want my pain to go away, I am depressed, I barely leave the house, I wish these doctors could walk in our shoes for a week!! My pain has effected my marriage, we almost got a divorce, we are still not together...but are working on going to marriage counsling ( anyone know of a good one? ) Our sex life is totally dead! cause of my pain and my bladder!! If I don't get some pain management soon, I am afraid what I might do! GO CRAZY! with drawl from my family completly, I don't want to talk or see anyone.... well sorry for rambling....had alot to get out..... :o)

Medications Bently as needed for my IBS Elmiron for my bladder Ambien for sleep synthroid for my thyroidOxycotin (spelling) for my pain, but it doesn't do much Percocet when I can get my hands on some Ativan

Anyone dealing with any of my problem i would love to talk to, or who could relate

And if anyone knows of any Doctors In Maryland....

Thanks for listening and sorry so long...

OCT 04,1999