Porphyria Educational Services
Porphyria Educational Services
Bulletin Vol. 2 No. 37 September 17, 2000
FOCUS: Pains medications and porphyria
Medications often are the first line of defense for acute pain.
But the question of which medication to use and when to use one
for chronic pain is very complex.
It is rare if a "quick fix" comes in the form of a pill
for chronic pain, and all medications have side effects and risks
of toxicity. Medications for porphyria patients have far more
risks than for the average patients with other diseases because
so many drugs are processed through the liver or contain known
triggers of acute agttacks.
As a key thing to remember as a porphyria patient, you should
approach medications and even over-the-counter pain relievers
with much caution, and always in active collaboration with your
primary care physician who should oversee all of the various
medications that you are taking.
So just what are the various pain medications?
There are NSAIDs - Helpful, but with serious side effects
There are also the complementary and alternative medicines which
also can help alleviate pain. These therapies cover a broad range
of healing philosophies, approaches and therapies that aren't
widely used by medical doctors,hospitals or paid for by
insurance.
Also it is good to point out here that many of these do not
undergo the rigorous testing that FDA approved drugs have
undergone. Also many have been found to be bad for porphyria
patients.
Complementary medicine refers to unconventional therapies used in
combination with diet, exercise and treatments prescribed by your
primary care provider.
Ogf course, some of these obviously are safe and sensible, such
as yoga or Tai Chi, which promote physical reconditioning
Also one can mention the fact that meditation techniques also can
counteract the stress of chronic pain and enhance relaxation
skills.
Alternative medicine is a therapy or healing approach used in
place of traditional medical care. Such medicine may include
consulting a homeopathic or naturopathic practitioner for health
care.
Because the purity of herbal medications is not regulated by the
Food and Drug Administration a porphyria patient must use
cautious consideration before using herbal therapies. Some of
these medications can be toxic, and they can interfere with
prescription medications. Also it has been noted that some such
medications can be quite expensive.
Jerry Steel PhD Pharmacology