Porphyria Educational Services
PORPHYRIA EDUCATIONAL SERVICES BULLETIN
Vol. 1 No. 36
Sept. 1, 1999
FOCUS: Glucose Protocol for Acute Attacks
The established glucose protocol for the treatment of acute
attacks of porphyria seems to have evolved over a period of years
and by various entities.
The glucose protocol reads as follows..
1. Draw basic blood chemistry [hgm, PT/INR,
WBC. RBC, platelet, electrolyte panel] this checks for infection,
blood problems associated with porph, and most importantly
the electrolytes check to be sure you are balance so you will not
experience the mental aspects of porph attacks.----
and hyponatremia etc. What are the electrolytes?
The electrolytes are sodium,
chloride, potassium etc.
2. Collect basic UA [ urine] - this is to
check for infection
3.Vital Stats: Blood pressure, pulse, and oxygen
4. Begin IV line
5. Begin intravenous feeding of 400-500 mg DW [glucose]
per 24 hours.
*If electrolyte panel show any defiency sodium
or potassium may be aded to the DW.
Speed and strength of dosage is
determined by the individual's vascular makeup [good veins
and ability to tolerate].
6. AT the end of 24 hours an additional 12 hours may be
infused.
7. If NO vast improvement then heme [Panhematin
Abbott Lab may be mixed and infused.
This is in the medical texts.......and up revised in 1997 to 400-500
from the previous 300-400 as recommended by APF.