Here's a few places for help.
(More added as found)
NORD - National Organization for Rare Disorders, Inc.
Currently,
to my knowledge, NORD only helps with two
accepted
treatments for Narcolepsy.
1.) Provigil.
2.) Xyrem
(Currently only to those in a approved study)
* NORD can
refer to another agency for help on xyrem.
They don't
at their organization directly help to the
best of my
knowledge.
- Jan 12, 2000