Agenesis of the Corpus Callosum-What Can I Expect?

OK...NOW WHAT CAN I EXPECT??

You might expect one or more of the following things after receiving a diagnosis of Agenesis of the Corpus Callosum.....

You CAN expect that your child will have a series of medical tests performed which might be overwhelming to you.
You might expect to feel shocked, overwhelmed and sad...
You might expect to feel anxious as you await test results performed
on your child.
You might expect to feel disbelief, that this just isn't true or even that something you have been told by a doctor or results from a certain test performed just are not true...
You might feel frustrated. Frustrated that there are no solid answers. Frustrated at yourself with all of the emotions and feelings and thoughts that fill your mind. Frustrated that you don't know what to expect...
You might feel scared for your child's future...
You might feel anger and denial...
You might feel like your child will be just fine because they seem ok right now...(especially if your child was diagnosed as a small infant)...
You might feel a loss for all that you dreamed and expected for your child...
You might feel like one day you want to find out all there is to know about ACC and the next day you don't even want to think or talk about it...
You might feel like you're finally dealing well emotionally with things only to find another thought or worry creeping back into your mind or a whole new issue arising which starts the struggle of emotions all over again...
You might feel guilty for why this has happened to your child and try to blame yourself for it...
You might feel like you're not doing enough to help your child develop to their greatest potential...
You might feel a big dose of reality hit and feel sad when you see your child playing in a group of children his or her own age and not yet doing many of the things that the other children can do...
You might expect to get discouraged and feel like crying when you watch friends or family member's babies who were born around the same time as your own child pass your child up developmentally as well as much younger babies who might pass your child up developmentally...
You might question whether or not you can get through this but you can by taking it one day and one step at a time...

Good-bye to baby books and their developmental milestones timetables...
Hello sweet, precious child who will teach me more than any book ever could!

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