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Website links concerning the Ponseti method of clubfoot (talipes equinovarus) treatment

Ponseti method for older children

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Inspirational stories of how the Ponseti method has helped older children.

Mia's Story

We adopted our wonderful daughter, Mia, from China.  We requested a child under the age of 3 who had orthpedic needs.  Mia's right foot was a clubfoot and she had no treatment until we brought her home to the U.S.  She was treated with the Ponseti Method starting at the age of 21 months. We originally planned on her having the traditional clubfoot treatment, reconstructive surgery.  After doing much research, we talked to five families, consisting of either adults who had clubfoot surgery themselves or their child had undergone surgery.  All of them said the surgery went well but they also commented that as they got older, they did have pain when they exercised.  One woman commented that she would stand on her "good foot....the non-clubbed foot" since it felt better.   After reading about the Ponseti Method, we learned that adult patients did not experience pain when they were older or when they exercised.

 

We emailed Dr. Ponseti in Iowa and he was extremely helpful.  We spent five weeks having her foot corrected with 6 castings and one percutaneous tenotomy.  It was definitely a sacrifice to travel to Iowa, but I knew that when she was older I would never second guess our decision to go with the Ponseti method.  Mia's foot was corrected easily and she had no complaints or blisters with the Ponseti/Mitchell foot abduction brace.   We are beyond impressed with the Ponseti Method.  We would recommend it highly to other families, noting that they should use a doctor that follows the method exactly.

 

In addition to a clubfoot, we found out that our daughter also has a tethered cord.  The majority of children with a clubfoot have no other medical issues.    However, if your child has a clubfoot along with other symptoms, I would highly encourage you to talk to your child's Pediatrician about getting an MRI.  
 
As signs of a possible tethered cord, we have heard of children who only have a sacral dimple, or just a small birthmark on their back.  Other children can just have bowel or bladder issues.  The website below explains it best.
 
 
Our daughter, Mia, has been a complete blessing.  She had spinal surgery to stop the tethered cord from causing more damage.  Her feet already had paralysis but the surgery prevented the paralysis from traveling up her legs.  Mia has been a complete trooper and has thrived in physical therapy.  She has gone from very wobbly legs....to walking using a walker... to now walking independently for about 15 minutes straight.  Swimming pool therapy has strengthened her legs and made them so strong.
 
If your child does have a tethered cord, there are two Yahoo groups that are very helpful.  One is called LMC and the other is the tethered cord group.
 

Best wishes with your child's treatment,

 

Holly

Elizabeth's story
Elizabeth was adopted from China at age 11 months with untreated bilateral clubfoot.  After 2 months of treatment with the only Ponseti certified doctor in Colorado, Dr. Hatch in Greely (about 1.25 hours each way from where we live), she was diagnosed with atypical/complex clubfoot in her right foot.  We made the journey to Iowa to see Dr. Ponseti himself and spent 1.5 weeks there with 2 casts for the right foot (only one for the left) and the tenotomy.  She started in the FAB on July 15, 2007.
Things look good, but there is still more work ahead.  Future updates can be
found on the blog; click on the clubfoot and Elizabeth tags for related information.
http://
bradswanson.blogspot.com

Allison's Story
Allison was adopted from China and her bilateral clubfoot was untreated up until the age of 3.5 when she was brought to Dr. Ponseti.  Her journey to correction in Iowa consisted of 17 castings and an ATTT (tendon transfer) procedure.  Previous consultations with American doctors had indicated that the little girl was potentially a candidate for amputation.  Those interested in contacting the mother, Joyce, about her daughter's clubfoot treatment may email her at  cjjidaho@netzero.net
 

Click here to read Allison's story

Allison's post-correction update (you must be a member of the nosurgery4clubfoot board to read this post, you will have to log in to view it):

Pictures of Allison's feet

Jude K's Story
Jude was adopted from China and started the Ponseti method (under the care of a Florida doctor) at the age of 2 for his previously untreated bilateral clubfoot.  The pdf download contains a letter written by Jude's mother about his treatment and pictures of his corrected feet.

Click here to download the pdf file with Jude's treatment story and pictures.

Jude L's Story
Jude was adopted from China and was brought to Iowa City to receive treatment under Drs. Ponseti and Morcuende.
Click here to see the family's adoption website with pictures of Jude's transforming feet.

Meizhi's Story
Meizhi was born with bilateral clubfoot in China.  She started receiving the Ponseti method in China at the age of 2 months.  After adoption at age 22 months, Meizhi continued treatment with Dr. Morcuende in Iowa City.

Click here to download Meizhi's story and pictures in a pdf file

Noah's Story
Noah was adopted from China at age 2.  He was treated for bilateral clubfoot by Dr. Lund in Texas and also had an appointment with Dr. Ponseti in Iowa.  Noah also has arthrogryposis. 

 Georgi's Story
Messageboard post and websites for a little girl from the UK who is using the Ponseti method to successfully treat relapses after the age of 6, having had surgeries for initial correction as an infant:

A doctor's journey to helping children
Dr. Julyn Aguilar, of Manila, describes how she came to realize she needed more training to improve the results in her young clubfoot patients.  After returning to Iowa for more training, she now is experiencing wonderful results for all her patients, including older children with previous surgical correction who were severely relapsed.