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Articles by Jean Miller
Sorry, as I started including these under Personal Articles/Stories I realized I was quickly
starting to hog the whole page! I have written several real life "stories" during my years caring for my daughter,
Kelly. I hope no one feels I'm being egotistical, but I feel some of these may be of some help to others
going through similar experiences. There are many more I need to review and convert to Word documents. |
Respite Care - Your First Time!
I think the apprehension, guilt etc come as part of the overall caregiver package
and the first time you have an opportunity to use respite care for your loved one, sometimes that guilt can be overwhelming.
When you DO get some respite time away for a day or more, here are some things that might help your loved one (and you) adjust:
Download document: Respite-Your First Time |
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Communication Book
The book I made up
for those caring for Kelly was a big help to temporary carers especially when
her speech was impeded, plus it made Kelly feel more secure knowing that there was a way for her to communicate her needs!
You can also see a few of the pictures I used in this book by clicking on: Picture Cards
Download or read: My HD Communication Book |
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A Crack In My Veneer
This is a post I made to Hunt-Dis in July 1998, 4 months before
Kelly died telling what it was like for "superwoman" to come apart at the seams when depression hit me like a ton of bricks.
Contains some sensitive discussion on the horrendous bed sores Kelly had. Download or read A Crack In My Veneer |
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Caregiver Depression-Let's Talk Honestly
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Getting Some To Make Plans
What I did to get Kelly to agree to making advance directives, a
will, burial plans, memorial service, etc. for herself that became a godsend for when she died 2 years later. Download or
read
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Giving Your Problems To God
My post written to another (male) caregiver discussing the
frantic, endless pace caregivers go through in caring for a loved one in the later stages of HD, tne caregiver "burnout" and
how turning your problems over to God helped me. Download or read: Giving Your Problems To God |
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Tell Me How To Cope
Letter written in response to a mother who has asked for advice on how to cope with the emotional strain
of caring for a child in the late stages of Juvenile Huntington's Disease. My personal experiences with Kelly. Download
or read Tell Me How To Cope |
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