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We are trying to find a doctor who will help our daughter.  She clearly has an abnormal head shape.  She has many symptoms, new ones coming up all of the time.  I believe that she has a mild case of Trigonocephaly that is causing her symptoms.  She is extremely irratable in the morning.  It takes her at least an hour to calm down in the morning, the rest of her mornings are spent sitting on my lap.  She has tremors in the morning.  I had her tested for Hypoglycemia because I thought maybe that was causing her irratability and tremors in the mornings but the test came back fine.  She likes to line things up in straight rows.  She will spend lot's of time with a piece of paper just ripping it up into small pieces and lining them up.  She does this with her food too.  She will sometimes suddenly panic over strange things like crumbs being on the floor.  She will shake with fear and stand in one spot until they are picked up.  Her speech is delayed.  At 2 years and 7 months she has about 30 words that she can say and be understood.  Camryn's hands and feet swell several times a week.  I took her to an allergist thinking that it was allergy related.  Although she does have alergies the Allergist saw her hands and feet begin to swell and turn red and said that isn't allergy related.  I took her to her pediatrician who sent her to have a blood test to check her kidneys and that came back fine.  I've done a lot of research on Craniosynostosis and Trigonocephaly and have found tons of information.  It is unusual for Mild Trigonocephaly to cause these problems but it can and I know of other children who were first diagnosed as mild but when the surgery was done they were found to be more severe than first thought.  Hopefully we will get a diagnosis soon and help for our daughter so she doesn't have to have these problems anymore. 
 
Thank you for checking out our site!

Camryn's head shape at the time of the CT Scan.  Taken in June 2004

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These pictures were taken of Camryn's head about one month after her MRI. Taken January 2005.

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This one below shows her Metopic ridge.  It was only palpable before.  Now it is visable.

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This one clearly shows her abnormal head shape.

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Camryns scans