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I've had two concussions in the past 6 years. I "woke up" in the ER both times. I lost about 2 hours the first concussion and 4 hours the second. I was bicycling after dark and both times I cushioned my fall to the asphalt using my head. It took me months after the second concussion to recognize that my mind was so different. My memory, sense of time, concentration, emotions, and thinking had changed.
I now recognize that I was depressed in months 4-7 after the second concussion, and that my time horizon was quite limited--as if I were living in a bubble of 2 days diameter. I started recognizing my constellation of quirks after searching for 'trauma' and finding TBI-SPRT in September 1996, about 2 years after second concussion.
When I meet people now, I tend to remember their names and often recall the context of my association; I no longer feel embarrassed to meet and talk with them. I don't hesitate to guess or ask their name. It's led to some pleasant brief chats, catching up on current doings.
People don't understand TBI==Traumatic Brain Injury until they've been bonked.
Please feel free to link to any of these pages.
My focus here is on leading a full and satisfying life
after mild TBI or concussion or bonk.
As of 1/9/98, the homepage and the direct links from it will remain.
As I continue to become aware of what I think, and as I clarify
and articulate my development, I'll update the content.
My diagnosis, I think. I haven't asked for my medical records from
the local hospital. Maybe it's time.
I dislike MDs. I live alone. It hasn't been a priority.
Most of the time I enjoy what I'm doing.
Yaron's story is one I identify with. But I don't have medical, legal,
insurance, or work hassles.
The webpage at VMMC
points to 4 different realms that require attention in recovering from a
concussion:
Erving Goffman wrote Stigma: Notes on the Management of
a Spoiled Identity and The Presentation of Self in Everyday Life
. He writes from the perspective of a Martian. Normal human social
life is strange, after all. It's about time for me to reread them
to appreciate the processes of relating to people. It may not make
it easier for me to meet and interact with people, but it will give
me a vocabulary for talking about it.
For me, when it was no longer possible to recall details of events
that used to be immediately accessible, it raised a host of problems
about how to relate to people. It's embarrassing not to remember
people's names. I was ashamed at not recalling how I had been
associated with people whose faces were familiar to me.
Not remembering activities from day to day reveals the illusion
of a constant self. It can be quite distressing to realize over
and over in a myriad of different ways, that one's self is not the same.
It opens the world for doing what I can with current (unknown)
abilities. I can awaken to the present ... even while
grieving
the loss of a former self.
The extent of "lost time" is an indication of the severity of damage to
brain tissue.
The first concussion (November 1, 1992)
The stitches over my eye were very fine. They itched. I went to an
opthamologist for a followup appointment.
I confuse "loss of consciousness" with "loss of memory" or "loss of
time". Clearly I was conscious enough to give my name and DOB
when I was admitted because it was on the bracelet I had on my
wrist after leaving the hospital.
The second concussion (September 26, 1994)
I have a vague memory of MRI and an uncertain memory of X-rays (being
wheeled through the halls to the X-ray room) to see what was going on with
left shoulder separation. I remember clearly talking with a very
concerned looking MD. The nurse was cheerful. They told me that I'd
asked several times where my bicycle was. I remember looking at the
clock. I was alone. I got off the stretcher and put on my clothes.
It was maybe 1pm when I finally got out of there. Since the taxi
services close at midnight, I walked home. I missed a day of classes.
I continued cycling daily to classes and the computer lab.
In 1994 I read Brain Boosters by Beverly
Potter and Sebastian Orfali, published in 1993. I found it clear
and concise. It started me thinking about brain nutrition.
In TBI-SPRT I saw a note recommending Dharma Khalsa's book
Brain Longevity. I've read the two introductory
chapters and scanned the rest. I'm thinking about buying it,
and considering how much it could add to my current program.
(The comments I found on stress management and physical and
mental exercise and on supplements have got me wondering how
fast I can learn if I just get out of my own way.)
These days I spend most of my reading time with my nose in
books on learning and programming perl. It's a challenge.
Emotions
on the surface, fleeting, shifting, inconstant. Moody.
If you have no problems crying in the presence of people, then
emotional lability won't be a problem or an issue. Since
I live alone, my tears of grieving and of anger weren't something
other people saw. Sometimes as I was listening to classical music,
tears would start streaming down my cheeks.
Others don't experience intense irritability and reactions that
are out of proportion to the stimulus. After brain injury, one's
rapid shifts of mood from one extreme to another without any
awareness of how it appears may make social interactions extremely
stressful. When I became aware of the differences I was both
depressed and embarrassed. I avoided people.
Quite a variety of stimuli that aren't a problem to others may prove
stressful after a brain injury. It includes any sudden changes--noises,
light, etc, or changes in stimuli that are out of one's direct control.
Visual clutter may be stressful. Fluorescent lights may be a problem.
keywords for search at
DejaNews == tbi + any of the following:
visual environment, fluorescent, full spectrum, daylight, Moeller, strategy
noise, sound, flashing, sunglasses, touch
I avoid dealing with bureaucrats, lawyers, medical
personnel, insurance agents. When I was subscribed to TBI-SPRT mailing
list, it was surprising to me to see how many of the messages revolved
around the hassles of coping with people whose purpose is to be helpful!
Dealing with those "helpers" after brain injury may be intensely
stressful. Please find
support in chat or mailing lists for TBI survivors
or caregivers. There are people who can provide specific support.
There are many who have been in similar circumstances. There is
much basic
information available.
Most people will not understand.
Clutter is an ongoing problem.
I get
distracted cleaning, sorting, organizing, putting things in place.
I live with stacks of floppy disks, books, clothes, books, music,
photocopies, newspapers, books, cases of computer disks, books, etc.
The clutter is in my way.
Maybe tomorrow. Or day after tomorrow.
This is a depressing topic for me.
I know that there is a newsgroup
alt.support.depression.
I have some of the symptoms of depression from time to time.
For SAD==Seasonal Affective Disorder, I take 500mg or 1000mg
caps of niacin (vitamin B3) while Daylight Savings Time is
off. I enjoy the rush (my body and face flush with increased
blood flow.)
There are some fascinating comments at some NLP sites about
how people can move from their depressive states of mind back to
competent and playful and alert and enthusiastic frames
and putting those in the present.
Perhaps at Carmine Baffa's site.
Search for "depression", learning, healing, memory, time, etc.
I started chatting on the Net shortly after reading his writings
on the Web. As a result of reading on "genius" and "attitude" I
had done some work remembering my experiences of making clear and
workable decisions and times when I was in a "flow" state or
"play" state. Recovery from depression is serious business!
How about St. John's Wort for mild depression?
As with all information that you read about herbs and supplements on
the Net, please do your own research and
find out possible side-effects and interactions before using.
Sometimes it's hard to know what
to search for when you're looking for information on the web using
search engines. Pick good keywords and you will go straight to
the information you want.
I like inference.com/ifind/.
It is forgiving of vague keywords because it sorts the hitlist in
a way that I can usually go straight to the information I seek.
TBI: Traumatic Brain Injury
My keywords for search at AltaVista:
A Glossary of TBI Terms at waiting.com
Most people do not understand TBI. This includes MDs and a
few neurologists. You can verify this by reading the TBI-SPRT archives
at DejaNews where they're stored as newsgroup
bit.listserv.tbi-support. (TBI-SPRT archives are also available
at http://www.sasquatch.com/tbi
but it takes a long time to load the 200K+ index file.)
Favorite links
Inference.com:
Quick, reliable multi-search engine
© 1998 Deimos
I remember starting
home in the dark and getting to the place where I hit the curb 75-100
yards down the driveway. I remember taking my bicycle to the bicycle
rack, locking it, and then going back into the building and looking at
myself in the mirror. There was abrasion where my forehead hit the
asphalt sidewalk. When I went back to class after a day of rest, I
found out from one of the security guards that they asked me what had
happened, as I was walking from the men's room toward the exit.
I passed out. I don't remember the ambulance. I remember the
woman MD who was proud of the little stitches.
On my way back from the laundromat, there is some retrograde amnesia
for the incident. I have memory to about 1/2 mile from the site of
the accident where apparently I had a collision with another bicyclist
riding in the dark (he on the wrong side of the road.) I found that
out by asking the police at the station the next day when I was
getting my bicycle. The front wheel was warped.
What helps me
I should do something about it.
There have been many comments on medication and depression in
TBI-SPRT mailing list.
As an experiment, I have been mixing a bit of St. John's Wort
into peppermint or licorice tea (with cinnamon stick) but I haven't
noticed changes. However, I've put up this website since starting
to use it. And I'm looking at the problems that I've been avoiding.
MTBI:
Mild TBI
PCS:
Post concussive Syndrome
concussion,
"mild TBI",
"accelerated learning",
"executive function",
motivation
memory,
NLP,
creativity,
concentration,
attention,
focus
Or search
DejaNews for
DejaNews matches the exact word, but its searches are
not case sensitive. The tbi in the searches above tends to
select articles from newsgroup bit.listserv.tbi-support.
Also select the "old" database for posts more than 2 months ago.
URLs for TBI==Traumatic Brain Injury
XAV8R's site
Tbilaw site
personal stories
BI guides
Trauma - What is Brain Injury
TBI-SPRT listserv
BRAIN-EDU listserv
Humor mailing lists!
Concussion & the year after
DejaNews:
great archive of usenet messages (de-spammed)
MGH Neuro chat: a bright, funny, intense online community
Joe Barta: Fun HTML Tutorials
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