DISCLAIMER

I was contacted by the IPIF. There link is on the LINK page. I was advised to let everyone know that I am in no way affliated with the IPIF.

The IPIF are questioning some of the symptoms I have listed regarding IP. However, these symptoms were provided to me by Anna's Dermatologist, and I was told that the rarest symptoms occur in only about 1/3 of reported cases.

IPIF also told me that I was potentially depressing some people and/ or their families that deal with IP; either with worst case scenarios or with best case scenarios. I am just writing what I was told by Anna's drs and a few websites (reputable websites, medical websites that, yes, I did check out with Anna's dermatologist)... and reporting the information to you.

Of course, you or your child may not have any of the symptoms... each case is different. There is so much new medical information out there, and so much more new ways of treating things, new things every day.

Please don't be alarmed by what you are about to read, whether it be good or bad. The majority of cases report skin changes, hair, nail, eyes,and teeth. There are CNS trouble reported in some cases.

I am just writing this as a safeguard on my part.

Please feel free to contact me by using the information on the contact page.

Thank you for your time.

~Cindy