Make your own free website on Tripod.com

World

Main page

Support Group

Support References

Questions and Answers

Informative Links

Hemangioma Hope

Hemangioma Newsline

Book on Hemangiomas

LinkExchange
LinkExchange Member
Birthmarks and Hemangiomas InterNETwork Support

The Birthmarks and Hemangiomas InterNETwork Support pages offer support, resources, and information on medical treatment of birthmarks and hemangiomas. This information is mostly directed toward the care of children with these. My web pages will be continuely updated in order to give you the latest information available. I hope these pages are helpful and answer any questions you may have. Click on the following links for more information on the topic listed. Some of the items listed may not have links yet. I'm still working on them. If there is a topic you would like to respond to please email me the information.I'm not a medical doctor just a parent trying to refer information to other parents. Please consult a professional who specializes in the care of hemangiomas or vascular malformations for the best treatment available. If you need to locate a doctor, please email me, Karla Hall or Linda Shannon (emails are listed below).
NEW
A email forum exists for discussions, John Battles from the Vascular Anomalies Information Page has set this up. This is a wonderful way to keep in touch with each other and discuss issues we face from day to day. To be added to the forum send a message to battles@mediaone.net in the subject box write subscribe and for posting a message to the forum just write for posting in the subject box.
Important Dates
Friday July 21 through Sunday July 23, 1st International Port Wine Stain Conference. Location: Charleston, SC This conference is to bring families together that are affected by these along with the physicians who treat them to discuss treatment.Please contact Linda Shannon at Info@birthmark.org

Jasmine and I are in Woman's World Magazine this week. Look for the article in the July 11 issue.THe article tells of our experience dealing with her hemangioma.

Important Information If you are looking for medical information that you have not found on any of my web pages, or have questions that you would like answered please contact Linda Shannon at Info@birthmark.org,Founder and Executive Director of The Vascular Birthmarks Foundation. She is a medical researcher and the person I seek information from. Karla Hall, email at hemangnews@msn.com, publisher of the Hemangioma Newsline also is a great person to ask questions. She has alot of information on this subject also. She is the person to contact about the newsline if you want to subscribe. Both of these women have lists of doctors for referrals.
IF you are looking for information on Hemangioma Hope (a support group) please email Cindy Dougan at CDouganHH@aol.com, she publishes it and can get you on the list. I hope this information helps. These are the people I look to for answers to your questions. Make sure you give them a full description of your situation in order to help you better.
.
DISCLAIMER:INFORMATION ON THIS SITE IS INTENDED TO BE PROVIDED AS A RESOURCE ONLY. BIRTHMARKS AND HEMANGIOMAS INTERNETWORK SUPPORT DOES NOT ENGAGE IN THE PRACTICE OF MEDICINE AND DOES NOT CLAIM TO HAVE ANY MEDICAL KNOWLEDGE. WE DO NOT PROVIDE MEDICAL ADVICE AND RECOMMEND THAT YOU SEEK THE OPINION OF A PHYSICIAN EXPERIENCED IN THE DIAGNOSIS AND TREATMENT OF HEMANGIOMA AND VASCULAR MALFORMATIONS.
Family We have had to make some serious decisions on my daughter's hemangioma. I was not aware of any support networks or of any information on treatment besides what the doctor recommended. We went with what the doctor suggested a partial removal which would leave a scar. Now that we have switched to a new doctor and I have learned so much about the treatment of hemangiomas, we probably would have done things differently. I hope these pages help people from making a decision they may question later.The least I can do is educate you on what is available for treatment and offer you support.
Even if you are just browsing please sign the guestbook. Thank you.
Sign My Guestbook Guestbook by Lpage View My Guestbook
hands
copyright© 1997 Birthmarks and Hemangiomas InterNETwork Support
Created 4-11-97 For more information contact Webdesigner at mgreco2660@cs.com