Providing Medical Information for the Diagnosis and Treatment of Vascular Birthmarks
Hemangioma is the most common benign tumor of infants. They are
usually apparent at birth but become evident within the first two weeks.
occur in 5-10 % of all children and three times more often in females then males.
occurs more often in Caucasian infants then in African American infants.
occur more often in premature infants.
Hemangioma will grow for the first 8-12
months of life.
Growth can be prolific and may appear to change daily.
will begin to regress or involute around 12 months of age. This process may take
up to 10-12 years leaving residual scarring.
SUPERFICIAL- located in the upper layers of the skin
MIXED- located in the upper and lower layers of the skin or internal organs
DEEP- located in deep tissue layers, muscle or internal organs.
70 % of all Hemangiomas occur on the head and neck but they may occur anywhere
including the internal organs like, the brain, liver, lungs, kidneys and GI tract.
Vascular Malformations are always present at birth but may not be evident until
later on in life.
Vascular Malformations enlarge as the child grows without a
prolific growth period. Growth may not occur until adulthood.
do not regress or involute spontaneously.
Vascular Malformations are often misdiagnosed
Vascular Malformations usually cannot be totally eradicated.
Capillary - Port Wine Stain
Venous - frequently mislabeled a cavernous hemangioma
Arteriovenous - usually involves internal organs, the most difficult to manage
Lymphatic - abnormalities of the lymphatic vessels and are usually apparent at
birth, difficult to manage
Mixed - a combination of the above, may involve fast and slow flow vessels and
shunting of blood flow
Hemangioma and Vascular Malformations are treated differently.
early diagnosis and evaluation of growth give best treatment options including steroid,
laser, alpha-interferon, surgical excision.
Vascular Malformation - options include
laser, surgical excision, embolization, scelerotherapy, and radiation
Evaluation of both Hemangioma and Vascular Malformations is essential for diagnosis
Hemangioma Newsline has a complete list of multi-specialty clinics located in
the United States specializing in Vascular Birthmarks.
Kasabach Merritt Syndrome
Klippel Trenaunay Syndrome
Parkes Webber Syndrome
Sturge Webber Syndrome
Von Hippel - Lindau
Hemangioma Newsline has specific information related to syndromes and complications.
complete list of affiliated support groups is available upon request.
Hemangioma Newsline has a professional advisory board to assist the organization:
Dr. Sean Freeman - Charlotte, NC, Charlotte Plastic Surgery and Laser Center,
Facial Plastic Surgery
Dr. David Low - Philadelphia, PA, Philadelphia Children's
Hospital, Department of Plastic Surgery
Dr. Susan Mallory - Saint Louis, MO Saint
Louis Children's Hospital, Director of Pediatric Dermatology
Dr. Martin Mihm -
Albany, NY, Albany Medical Center, Director of Dermatology and Dermopathology
Joseph Morelli - Denver, CO, Colorado School of Medicine, Department of Dermatology
John Reinisch - Los Angeles, CA, Children's Hospital of LA, Chairman Department of
Dr. Milton Waner- Little Rock, AK, Arkansas Children's Hospital,
Department of Otolarynogology
Dr. Denise Adams - Durham, NC, Duke University
Medical Center, Pediatric Hematology/Oncology
Ms. Linda Shannon - Albany, NY,
Medical Research Specialist, Writer, Albany Medical Center, The Hemangioma and Vascular
Mrs. Karla Hall - Greensboro, NC, Medical Research Specialist,
Founder Hemangioma Newsline
Mrs. Lillian DuBiel - Raliegh, NC, Family Support,
Hemangioma Newsline was established to provide families with vascular birthmarks
the most recent medical information. Hemangioma Newsline is a part of a network of
organizations supporting, treating and educating patients of their options in the
management of Hemangioma and other vascular lesions.
Hemangioma Newsline publishes a quarterly newsletter. The Hemangioma Newsline,
edited by Karla Hall. She is the mother of two children, one of whom was born with
a mixed hemangioma located in the diaper area. The tumor ulcerated, bled and caused
extreme pain. The Halls consulted several physicians before finding a physician that
could help their daughter. The Hemangioma was operated on with two types of laser
and ended 18 months of pain for the child.
Karla is a medical researcher, having worked in both clinical and pharmaceutical
research. She resides with her husband and two daughters in Greensboro, NC.
Hemangioma Newsline does not promote one physician or treatment option, but does
encourage early evaluation and treatment from a physician experienced in the management
of vascular lesions. Write to Hemangioma Newsline for an annual subscription for
PO BOX 38264
Greensboro, NC 27438-8264