Living with Ichthyosis


My Story and how I beat it

   My Story      Bathing        Moisturizing         Exfoliating         Killing the Monster        Daily Routine       Diet     

"You can't kill it, but you can send him packing"

  Killing the Monster

Is there a cure for Ichthyosis ?

No one really knows, most of the medical research and diagnosis has been for treating the presenting symptoms of the condition and not much has been put aside for its cure.

The bottom line is this...

We all know how society and the almighty dollar work. Yes even when it comes to the lives of several thousand people if not millions, they claim 1 out of every 6000 people suffer from Ichthyosis. There is no money for research or even interested parties willing to finance a remedy or possible cure. They claim it is hereditary and other forms of Ich are from birth. They have recently found a gene which has a lot to do with only one form of Ich. But the bottom line for me was knowing that after so many trips to dermatologist and doctors and having had to go through most of my life in seclusion or embarrassed to be out in public and around others led me to find an alternative course of action. I was getting tired of hearing the same thing..."I can give you something to relieve the itching", "I can give you something to bathe with" " sorry there isn't much I can do, you should see a dermatologist", Here have this prescription filled and use it in your bath water" . 

Yeah ok, I am a grown man who doesn't particularly care to take "Bubble" baths anymore. And just wants it to go away.!!!!

I was getting tired of using a dinner knife on my arms and legs and leaving a trail of skin flakes in my bed sheets, not being able to walk or bend over and having no one to care about me because I was a "Fish" out of water.

Which is the reason for my dedication and devoted method of getting rid of Ich.

Anyway, to answer the question....No, I don't think it can be killed. But it can be controlled and made to go away for periods at a time, even long periods.  Yes, I firmly believe it can, because I have done so. What works for me, may not work for others, but I am sure that in extreme cases and very bad cases of crusty skin, bloody cracks and flakes, one could not ignore what I have come up with and apply the same methods to their course of treatment.

I am willing to discuss what I do and how my Ichthyosis has controlled my life and what I do to "control" it. And offer any support I can to those of you wishing to find alternative methods for controlling your condition.


What is Ichthyosis

Types of Ichthyosis

Autosomal dominant ichthyosis vulgaris

Congenital ichthyosis

Autosomal recessive lamellar ichthyosis

autosomal recessive nonbullous congenital ichthyosis

X-linked recessive ichthyosis (vulgaris)

Harlekin ichthyosis

Bullous congenital ichthyosiform erythroderma of Brocq

"ichthyosis linearis circumflexa"




How to treat the symptoms.





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