PES Bulletins Index

Disclaimer
All information published in the Porphyria Educational Services Monthly Newsletter is to provide information on the various aspects of the disease porphyria and it's associated symptoms, triggers, and treatment.

Columnist and contributors and the information that they provide are not intended as a substitute for the medical advice of physicians. The diagnosis and treatment of the porphyrias are based upon the entire encounter between a physician and the individual patient.

Specific recommendations for the confirmed diagnosis and treatment of any individual must be accomplished by that individual and their personal physician, acting together cooperatively.

Porphyria Educational Services in no way shall be held responsible in part or whole for any injury, misinformation, negligence, or loss incurred by you. In reading the monthly newsletters you need to agree not to hold liable any contributing writers.

Abdominal Pain
     Diagnosis of Abdominal Pain in Acute Porphyria

Acute Attacks
     Intervention Therapy for Acute Attacks (Hematin)

Acute Hepatic Porphyrias
     Acute Hepatic Porphyrias

Acute Porphyrias, Management
     Management of the Acute Porphyrias

Advocacy Program
     Porphyria Patient Advocacy Program

ALA-D Porphyria
     ALA-D Porphyria

Allergy
      Latex Allergy
      Clinical Manifestations of Latex Allergy

Anesthesia
     Anesthesia and the Porphyrias
     Anesthesia and the Porphyric

Anesthetics
     Dental Anesthetics & The Porphyric

Blisters
      Blisters and PCT

CEP
     CEP

Chester Porphyria
     Chester Porphyria:

Chlorine
     Chemical Toxins & Chlorine
     Chlorine in Medicine: Pros/Cons of Chlorine

Chronic Pain
     Porphyrics & Chronic Pain

Clinical Trials
     Clinical Trials & Medical Research

Congenital Erythropoietic Porphyria (CEP)
     Congenital erythropoietic porphyria.

CPT Medical Coding
     CPT Medical Coding

Dental Anesthetics
     Dental Anesthetics & The Porphyric

Disorders of Porphyrin Metabolism
     Disorders Of Porphyrin Metabolism

Drug Labeling
     Photosensitivity & Drug Labeling

Electrolyte Balance
     Fluids and Electrolyte Balance

EMG
     EMG In Testing Peripheral Neuropathy

Environmental Factors
     Environmental Factors and the Porphyrias

Erythropoietic Porphyrias: EPP & CEP
     The Erythropoietic System Porphyrias: EPP & CEP

Factoids
     Porphyria Factoids

Fatigue
     PORHYRIA AND FATIGUE

FDA
     The FDA

Fluids
     Fluids and Electrolyte Balance

Gabapentin
     Seizure Treatment In The Acute Porphyrias: Gabapentin aka Neurontin

Gallbladder
     The Liver & Gallbladder

Genetic Aspects
     Genetic Aspects of Porphyria
     Gene Therapy Unlocking Many Mysteries
     Porphyria and Mendelian Disorders
     GENOMICS
     Genes and Genetics
     Recognize Genetic Disease

Genetic Testing
     Genetic Testing

Glucose
     Glucose Protocol for Acute Attacks
     Glucose Therapy

HCP
     HCP
     Hereditary Coproporphyria [HCP]

Hematin and Panhematin
     Hematin & Panhematin

Heme
     Heme Pathway

     Heme, Cytochrome P-450 and Porphyria

HEP
     HEP

Hepatic Porphyrias
     Acute Hepatic Porphyrias

Hepatitis
     Hepatitis
     Hepatitus C Infection and Porphyria

History
     The Importance of a Family Medical History
     Porphyria Historical Aspects

Hyponatremia
     Hyponatremia
     Hyponatremia and Porphyria

Intervention
     Intervention Therapy for Acute Attacks (Hematin)

Latex
      Latex Allergy
     Latex Sensitivity       Clinical Manifestations of Latex Allergy

Liver
     Porphyria and the Liver
     The Liver & Gallbladder
     Maintaining a Healthy Liver
     Liver Transplantation and Porphyria

Management of the Acute Porphyrias
     Management of the Acute Porphyrias

Medical Research
     Clinical Trials & Medical Research
     Medical Research & Patients Rights

Mendelian Disorders
     Porphyria and Mendelian Disorders

Metabolism, Disorders of Porphyrin
     Disorders Of Porphyrin Metabolism

Methyl Bromide
     Methyl Bromide
     Methyl Bromide

Neurontin
     Seizure Treatment In The Acute Porphyrias: Gabapentin aka Neurontin

Neuropsychological Aspects
     The Neuropsychological Aspects of Porphyria

Nursing
     Nursing Considerations Regarding Porphyria Patients
     More Nursing Considerations for Porphyria Patients

Pain and the Pain Scale
     Diagnosis of Abdominal Pain in Acute Porphyria
      Chronic Pain and Porphyria
     Chronic Pain and Porphyria
     Controlling Pain in Porphyria
     Pain Medications and Porphyria
      Pain in Porphyria & The Pain Scale
     Tips for Managing Pain

Patient's Record Keeping
     Porph Patient Record Keeping

Patient's Rights
     Focus On Patient's Rights
     Medical Research & Patients Rights

PBG testing
     PBG UrineTesting

Porphyrinogenic Materials
     Porphyrinogenic Chemicals & Pharmaceuticals

PCT (Porphyria Cutanea Tarda)
     Porphyria Cutanea Tarda
      Blisters and PCT

Photosensitivity
     Photosensitivity & Drug Labeling

PN (Peripheral Neuropathy)
     Diagnosis Of Peripheral Neuropathy
     EMG In Testing Peripheral Neuropathy
     Physiology & Anatomy of Peripheral Neuropathy
     Porphyric Polyneuropathy

Porphyria
     Porphyria Factoids
     Porphyria: A Basic Overview
     Porphyric Triggers

Porphyria Cutanea Tarda (PCT)
     Porphyria Cutanea Tarda.

Porphyrins and Pyrroles
     Understanding Porphyrins and Pyrroles

Protoporphyria
     Protoporphyria

Psychological Aspects
     The Neuropsychological Aspects of Porphyria

Record Keeping
     Porph Patient Record Keeping

Research
      Porphyria Research

Seizures
     Seizure Treatment In The Acute Porphyrias: Gabapentin aka Neurontin

Sunlight
     Sunlight and the Porphyria Patient

Symptoms
     Symptomology-Incidence of Acute Hepatic
     Symptomology of the Acute Porphyrias

Terminology
     Porphyria Terminology

Testing
     Delta ALA Urine Testing
     EMG In Testing Peripheral Neuropathy
     Genetic Testing
     PBG UrineTesting
     Red Blood Cell Testing
     Testing for Porphyria
     Porphyrin Urine Test
     Wood's Lamp Test for Porphyria

Therapy
     Glucose Therapy
     Intervention Therapy for Acute Attacks (Hematin)

Toxic and UNSAFE Chemicals
     Chemical Toxins that Affect Porphyria Patients.
     Chemical Toxins & Chlorine
     Toxicology
     Chlorine in Medicine: Pros/Cons of Chlorine
     The Chemical Toxin PCB
     Polyvinyl Chloride, Phthalate & Vinyl Chloride

Treatment
     Seizure Treatment In The Acute Porphyrias: Gabapentin aka Neurontin

Triggers
     Porphyric Triggers

A Variant Form of AIP
     A Variant Form of Acute Intermittent Porphyria

Variegate Porphyria
     Variegate Porphyria
      Variegate Porphyria: Past, Present & future.
VP
     VP

Vitamine C and Porphyria
     The Questions Of Vitamin C And Porphyria

Wood's Lamp
     Wood's Lamp Test for Porphyria