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Since I developed fibromyalgia after a near accident that resulted in whiplash in 1998, I've learned a lot about this
insidious and mysterious syndrome. As always, I'm glad to share whatever I've learned with others.
Open Letter
Click above to read what my journey with fibromyalgia has been like.
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Fibromyalgia is a medical condition that many, including some physicians, do not believe exists. Most of those
non-believers think it is all in your mind. However, recent medical research has shown that there is a chemical in your
brain that determines your perception of pain and fibro sufferers seem to have an overabundance of this chemical.
What is a light touch to someone else can be a painful sensation to a fibro sufferer. Deposits of lactic acid build
up under the skin in certain areas of some people who have FS (Fibromyalgia Syndrome). I have these along
my upper ribcage, a bit below the underarms. They feel like crunchy bubblewrap and they hurt a lot if they
are touched. Also, fibro patients have pain in specific spots or points. There are hundreds of places these points
can crop up, although specific ones are used for diagnosis (see diagram below). There are two types of points, pressure
points and trigger points. Pressure points are at the site of acuppressure points and you can temporarily relieve some
of the pain by applying pressure to them. Trigger points hurt at the point and also cause pain somewhere else when
pressure is applied. A couple of the identifying criteria are that you have pain without any known cause in all four
quadrants of your body for more than 3 months and that you have pain in at least 11 of 18 specific pressure points (see
diagram below). Since many sufferers end up at a rheumatologist's office, because their pain seems joint related,
this class of doctors knows more about fibromyalgia and sometimes this means that your diagnosis is not accepted if it is
made by a regular doctor.
Another difficult thing about this disease is that it is a seemingly invisible condition. Nothing appears to be
wrong with you, so what is your problem?, is the attitude many will take with you. There have been times when I wished
certain people could live one day in my body, but in truth I wouldn't wish it on my worst enemy!

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