July & End of Treatment
July 2nd...
Well there are only 2 treatments left now. One at our local doctors office and the other one at Cheo. On July 10th Michael has his last Methotrexate Intermuscular needle. He also has a lumbar pucture and a bone marrow aspiration to confirm that he is still in remission. We have no reason to think otherwise. He is doing fantastic. Feels great and he is full of energy. Then we go to monthly off treatment visits for the first year and then gradually it gets less and less that he has to go to Cheo.
We are holding an open house on July 21st as after the 10th he needs to take one week of chemo pills and then on July 17th his takes his last pill.
We cannot believe how fast the time has gone by. But then again Michael is doing fantastic and at least for 2 years people wouldn't know that he has been on chemo he is doing so well.
We have started a postcard campaign and he has received over 160 postcards from all over the world to congratulate him on the end of his treatment.
Michael's relaxation therapy has worked so well on him that he is now able to go to the dentist and get a needle in his mouth to have a filling. We are totally and utterly amazing at what he is now capable of doing. He also helped his sister Ashley through some painful moments when she broke her wrist.
This is Michael on his way for his last treatment at Cheo with his magical brave bears!
July 10th...
Today Michael had a bone marrow biopsy, lumbar puncture, his last intermuscular needle with methotrexate, and blood work. He was so excited to have his sleepy test. Of course the BMA, and LP all came back clear and clean.... we didn't expect anything else. We gave Michael a beanie buddy beginning bear to symbolize a new beginning for him. We felt nothing but total happiness for him. Our whole family was there to support him.
What a wonderful feeling ....... no more chemo in 7 days.....
When we got home we had the Forders put up a congratulations sign and balloons for Mike saying 7 more days of chemo....
This is a photo of Michael and Dr. Halton. We owe so much to her. She is just awesome. Michael printed a message to her and I framed it. It was thanking her for making him well again.
July 17th...
Well today is Michael's last chemo day.... In the morning The New RO ( our local news team) showed up to film Michael's last chemo pill. It was awesome. All the neighbourhood kids gathered around to watch. There was balloons, confetti and lots of cheering.... it was awesome. We were all filmed and the feelings that I had were so incredibly happy it is difficult to describe. In the evening we invited our closest friends The Forders over. They have been there from day 1 for us. They have always made themselves available to us as if we were calling 911 and they would be here. We can never repay what they have done for us over this 2 1/2 years. We had a little celebration as Michael took that last chemo pill. I had stitched a piece for each of the Forders and made it into a quillow. We gave Michael a medal for his bravery, which he truly deserved, and we also had a no more chemo cake.We also gave the girls both a special beanie baby to represent the end of treatment too. Afterall they had to put up with the mood swings from Mikey too. As he said, "that's for putting up with me when I was crabby and bugging you".
It was a very happy evening for all of us.
July 18th...
What a strange feeling to wake up to no chemo. If it wasn't for the dilantin there would be no pills at all. We are going to see the neurolgist on August 20th to see about weaning him off of his seizure medication. I feel that now that the chemo is over we shouldn't need the dilantin. We will soon see.
July 21st.......... Its Celebration Day...... Open House...... Let's Party!
We had an open house today and around 50 people came to congratulate Michael on his end of treatment. It was incredibly humid and hot so there wasn't a huge crowd of people. This was good because we were able to talk to each and every person that came. We had a dinner for some of our special friends at night. There had to be close to 50 people there too and after I said a few things to each and every person there we released his 22 helium balloons that he had with messages in. Just before the release Marc, Chantal and Rita presented him with some gifts and then sprayed him with the spray silly string.... he was shocked at that..... The 22 balloons represented all of the lumbar punctures that he had over his course of treatment. We chose this to use in our celebration because that was the only test that Michael actually liked. He called it his sleepy test as he was put to sleep for it. The only thing we can figure is that he either was happy to not feel pain or he got a little high off of the sedation. Either way he didn't have a problem with it so that is what we used for our count of balloons. Each balloon had a message tied to it telling what he had gone through and to contact us if they found the balloon. It was alot of fun releasing them.
The New RO came down from Ottawa and also filmed him on and off all afternoon. He is getting so professional in his interviews.... big difference from way he used to shy away and talk baby talk.
When asked..."Do you think you are Brave?"
His answer was ........ "I AM !!!"
I have to agree with him. I have never seen a braver boy in my whole life.
MICHAEL.......... YOU ARE MY HERO!!!!!
Love MOM..... xoxoxo 
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